In the News
|Posted on August 19, 2008 at 4:45 AM|
19 August 2008
The family of a girl with a brain disorder are seeking money for treatment to improve her quality of life after funding cuts.
Nikita Ray needs 3,500 to attend an intense two-week course in hospital which would help her make progress against an illness she has had from birth.
The six-year-old, from Grafton Road, Rushden, was born with cerebral palsy and microcephaly, which means her brain develops at a slower rate than normal, but she has battled her condition to improve her posture and mobility.
In the past healthcare authorities have funded her physiotherapy courses at Bobarth Hospital in London, but her parents say the cash has now run dry.
Dad Malcolm Ray said: "We are willing to drive hundreds of miles because the course is that good.
"It's got her sitting up a bit and it's taught her how to handle toys, how to roll and move about.
"Whenever she goes there she changes completely.
"When she comes back she starts doing things we thought she'd never do.
"I can't believe how much she comes along.
"Taking the time to get this money is a full-time thing.
"It has been recommended that she goes and we really want her to go."
The course is comprised of a 45-minute lesson each day, which sees specialist staff working with Nikita to improve her mobility.
On the first few days Nikita is assessed so doctors can decide how best to spend her time on the course.
She is then taught to do new things such as using objects and moving on the floor before being given a set regime of activity to help her to develop further.
Parents Malcolm and Trudie are also taught how to manipulate her arms and use physiotherapy techniques to continue her development at home.
In the past it has helped her sit up on her own for four to five minutes and take part in activities such as coast walking and horseriding with her parents.
Nikita, who attends Rowan Gate Primary School in Wellingborough, is much loved in the community and by Evening Telegraph readers.
In January 2004 The Evening Telegraph launched an appeal to raise money for a specialist wheelchair, worth more than 2,500.
It was designed to give Nikita greater independence and was bought with money from the Nikita Jade Disability Fund, with money coming in from readers and a wheelchair service.
The family has received a 61,000 council grant for an extension to the side of their house for a bedroom, bathroom and specialised hoisting equipment to help Nikita.
Anyone who would like to donate to Nikita's fund can contact the Evening Telegraph on 01933 443562.