Nikita Jade Disability Fund

Raising money for a special girl

In the News

Extra! Extra! Read all about it!

Read all about Nikita, and the NJDF. The good, bad and the ugly. It's been a tough fight for Nikita over the years, and without the help of some very generous people Nikita would not be able to do half the things she does now. 

To read the original articles please visit the Northants Telegraph page, the link can be found on our links page.

view:  full / summary

Cabaret event in aid of Rushden girl Nikita

Posted on January 9, 2015 at 11:05 AM Comments comments (0)


An entertainment evening has raised a huge £1,100 to help make a disabled youngster more comfortable.


 

The event, dubbed Bring It On, was held at Rushden Town Bowls Club, in aid of 12-year-old Nikita Ray, who suffers from a number of disabilities.

The evening was organised by Jayne Wiggins, from Rushden, who had never met Nikita or her family prior to organising the event.

Jayne said: “It was an absolutely brilliant success. It was a community effort in that so many people gave up their time for free.

“It’s been brilliant to raise money for Nikita and to become friends with Nikita and her family. We will be going on and doing more with them.”

The 12-year-old’s dad Malcolm Ray has paid tribute to Jayne for the work she did organising the fundraiser.

Malcolm said: “It was a lovely event. Nikita came along and had a great evening watching the dancing.”

He added that the family had been pleasantly surprised when Jayne approached him to propose holding the event.

He said Nikita was doing well at Greenfields School in Northampton, saying: “They are bringing her along like you wouldn’t believe.”

Mum-of-three Jayne planned to support 40 charities to mark the run-up to her 40th birthday.

“Although she fell short of her target she has continued to do what she can for local good causes.

She said: “I chose the Nikita Jade Disability Fund after a promotion celebrating almost 10 years of the fund raised the profile and reminded me how often I have seen this little girl in the town as her family have been at events like Party in The Park and Christmas events in the High Street.”

The evening featured music, dance and other entertainment. More than 330 people attended throughout the evening.

Victory for Nikita

Posted on February 25, 2014 at 7:20 PM Comments comments (0)

Dance fundraiser will help pay for Nikita's treatment

Posted on February 25, 2014 at 7:05 PM Comments comments (0)


6th February 2014

A 1940s-themed fundraiser takes place next week to raise money to help a Rushden 12-year-old who suffers from a brain disorder.

 

The parents of Nikita Ray, who celebrated her 12th birthday earlier this month, have organised a dance to take place on Valentine’s Day, from which they hope to raise money to help pay for another round of treatment.

 

Each year, Malcolm and Trudie, Nikita’s parents, send her to the Bobath Centre, a specialist centre in London for children with cerebral palsy.

 

Every round visit, which involves physiotherapy, speech therapy and occupational therapy over a two-week period, costs £4,000. The family are still trying to raise £1,000 in order to fund the latest treatment.

 

“This is what we face every year, trying to raise £4,000,” Malcolm said.

 

“She’s been doing it since she was four. Even the specialists say how well she’s doing.

 

“She’s active, although she can’t walk or talk. She can’t communicate, although we found out last year she understands quite a lot of what we say.

 

“We think if we can get her into the Bobath again they can work out how we can communicate with her.”

 

The dance takes place at the Athletic Club in Newton Road, Rushden, at 7.30pm on Friday, February 14.

 

Tickets for the 1940s-themed event are available from Heavenly Cuppa in Rushden or via the Nikita Jade Disability Fund’s Facebook and Twitter links, where there is also more information.

Thousands sit in a Cheddar Valley field to enjoy great music

Posted on September 2, 2013 at 7:10 PM Comments comments (0)

MORE than 1,500 festival-goers sat in a field over the weekend in the Cheddar Valley - all to raise money for some worthy causes.

The Sat in A Field Music and Arts Festival proved to be a bigger success than organisers Mike David and Marc Atkins had anticipated, with the duo having to hire out an extra six acres of land because of the sheer amount of bands involved

Held over August 23, 24 and 25 in Clewer, the festival was raising money for Children’s Hospice South West, Myeloma UK and the Nikita Fund.

Bands on the main stage including The Communicators, Jamie Clarke’s Perfect, The Orphans, and The Riverbrew to name a few, with The Cube Stage introducing Criminal Minds & Tribe Steppaz, Wragg and Scorpio along with many others, and The Otters Pocket stage including Gavin Cox, Harrisen Larner-Main and Mark Buster McAdam. There was also a children’s tent with magic shows, circus workshops, bouncy castles and Punch & Judy.

Mike said: “We were blown over by the number of people that attended the festival. We did a trial run last year for my birthday, on a much smaller scale but just to test how it would run. We have a five year plan in place to take the numbers up, but we are going to be very careful how we grow it, we don’t want to jump too fast, too quickly.”


 

Over the festival weekend Mike and Marc were visited by members of Mungo Jerry and Bad Manners, who registered their interest for future years, and Mike said he was told the festival had a real feeling of Glastonbury when it first started out.

Although Glastonbury Festival organiser Michael Eavis is one of Mike’s heroes, he says he’s a different person with a different festival - but who knows, over the next five years maybe Sat in a Field will be as popular as Glastonbury.

You can find out more about the festival on www.satinafield.com, on Facebook and Twitter.


Give your unwanted gifts to help Nikita

Posted on May 27, 2013 at 5:25 AM Comments comments (0)

10 February 2013

People are being urged to donate any unwanted gifts to help raise funds to pay for the treatment of a little girl with a brain disorder.

Nikita Ray, 11, of Rushden, has cerebral palsy, microcephaly and global developmental delay. She is unable to walk, talk or communicate clearly.


 

The Nikita Jade Disability Fund was set up to help raise money for the youngster as she needs specialist equipment and various treatments.

 

Her parents Trudy and Malcolm Ray and the charity’s committee members hold fundraising events to raise cash.

 

They are currently appealing for donations for the tombola stalls they hold at events in the Rushden area.

Mr Ray said: “We are appealing for any unwanted new gifts to be donated for a tombola stall. We try to hold two or three tombolas a year at events, including Party in the Park.

“All the money raised will be used for Nikita’s treatment at the Bobath Centre in London, which specialises in improving the independence, health and well-being of people living with cerebral palsy.”

Mr Ray added: “It’s £4,000 a time, but they are the best of the best and it benefits her 110 per cent every single time we go there.

“It has been a godsend. What the staff do is out of this world.” 

During Nikita’s last visit to the centre staff worked on her communication skills.

Mr Ray said his daughter is subsequently now able to understand about 80 per cent of what is said to her, despite not being able to communicate back.

Gifts can be donated at Heavenly Cuppa in High Street, Rushden, between 9.30am and 3pm, Monday to Saturday.

More info about Heavenly Cuppa visit www.heavenlycuppa.co.uk

For further details about Nikita and the charity visit www.njdf.co.uk.


It's panto time for Nikita, Oh yes it is!

Posted on May 27, 2013 at 5:10 AM Comments comments (0)

27 October 2011

Cinderella, the Ugly Sisters and Robin Hood are among a cast of hilarious characters who will be raising funds for a disabled youngster.

They promise laughs and family fun in the show Cinderella and the Pantomime Thief, a spoof on the fairytale favourite which is being staged to raise cash to help young Nikita Ray.

The nine-year-old has dystonic quadriplegia cerebral palsy and a number of other conditions which means she is unable to stand, crawl, talk or feed herself.

Her parents Trudie and Malcolm, of Grafton Road, Rushden, are planning to send Nikita to the Bobath Centre in London in January for an intensive two-week physiotherapy course. They need to raise £850 to cover the cost of the £3,800 course and the family’s travelling expenses to London.

Mr and Mrs Ray will be playing the Ugly Sisters in the panto, which they hope will help them reach their target.

Mrs Ray said: “The panto is absolutely hilarious and will be great fun for all the family.”

The show is being staged at Park Road Baptist Church in Rushden on Friday, November 25, and Saturday, November 26.

Doors open at 7pm on both days and the fun starts at 7.30pm.

Tickets are £4 for adults, £3 for concessions and £10 for a family ticket. There will be no admission charge for the under-fives.

The panto has been directed by former professional actor Mark Neale. Mrs Ray said: “A couple of years ago we staged a pantomime called The Three Musketeers to pay for Nikita’s treatment. “It was a great success but this time, with Mark’s wealth of talent and experience, we’re hoping the show will be even better. The cast is people from the church and others in the town who have kindly volunteered to take part.”

Thanks to treatment at the Bobath Centre Nikita is making progress.

Mrs Ray said: “The therapy has been invaluable. Nikita can now roll over which means she has some independence when playing on the floor. She can sit up unsupported for a short while and is learning to make choices between objects.”

Tickets for the panto are now on sale at Heavenly Cuppa in High Street, Rushden.

Festive fun nets cash for Nikita, 8

Posted on May 27, 2013 at 5:10 AM Comments comments (0)

05 February 2010

An eight-year-old girl who suffers from a brain disorder will receive vital treatment thanks to the success of a pantomime. 

Nikita Ray, of Rushden, was born with cerebral palsy and microcephaly, which means her brain develops at a much slower rate than normal.


In 2004, the Evening Telegraph launched an appeal to help her family raise money for a wheelchair and since then readers have helped collect thousands of pounds for the Nikita Ray Disability Fund.

To thank the community for its support, Nikita's parents, Malcolm and Trudie decided to stage a pantomime of the Three Musketeers at the Full Gospel Church in Rushden.

The show was a huge success, raising 1,204, which means they will now be able to send Nikita to the Bobath Centre in London for therapy which is invaluable to her and her family.

Mr Ray said: "It went really well.

"We sold about 190 tickets and have had plenty of feedback saying how brilliant it was.

"It has been a bit of a struggle raising the 4,000, but we have finally done it and now have 200 towards next year's treatment.

"We would like to say a big thank you to everyone in the community who has given us their support as it really does mean a lot to us."

Nikita's family has seen huge progress in her communication and movement since being treated at Bobath last year and are hoping to send her again next year.

The pantomime is set to become an annual event.

Panto's for Nikita's fund

Posted on May 27, 2013 at 5:05 AM Comments comments (0)

08 December 2009

Families in Rushden are being invited to a pantomime to help raise funds for a girl with a brain disorder.

 

Seven-year-old Nikita Ray, of Rushden, was born with cerebral palsy and microcephaly, which means her brain develops at a much slower rate than normal.

 

In 2004, the Evening Telegraph launched an appeal to help her family raise money for a wheelchair and since then readers have helped collect thousands of pounds for the Nikita Ray Disability Fund.

 

Now, her parents Malcolm and Trudie are to stage a pantomime production of The Three Musketeers to give something back to all those who have helped them with fundraising.

 

Mrs Ray said: "We felt we had asked people to raise funds so many times and we wanted to give something back and thought we would have a go at putting a show on.

 

"Everyone loves a panto and it will not only be good fun but will help raise funds to help Nikita. Last year Nikita's treatment cost just under 4,000 and she has come on with her communication and movement because of it.

 

"As a family it is very frustrating knowing there are treatments out there and not being able to afford them so we really appreciate people's help as it means we can offer our daughter the best treatment possible."

 

The Ray family is hoping to raise 4,000 for Nikita's ongoing treatment by staging the pantomime and so far preparations are well under way.

 

The show was due to be staged in November, but one of the cast members had to drop out when he moved to London.

 

It took time to get everything back on track, but with the scenery finished and half of the costumes already made, the family is looking forward to putting on a great show.

 

Mrs Ray added: "I think it is going to be great fun for every age group and just a good family show so we hope people will come along."

 

The performances will take place on Friday, January 29, and Saturday, January 30, at 7.30pm at the Park Road Baptist Church in Rushden. Tickets cost 6 for adults, 3 for children and 15 for a family of four.

 

These can be bought from the George Alan shop in High Street, Rushden, or by calling 07905032312.

Panto for little Nikita

Posted on May 27, 2013 at 5:00 AM Comments comments (0)

02 December 2009

TICKETS for The Three Musketeers will be on sale this weekend.

 

The pantomime is being staged in January by the family of a young girl who has a brain disorder.

 

Seven-year-old Nikita Ray, of Rushden, was born with cerebral palsy and microcephaly, which means her brain develops at a much slower rate than normal.

 

In 2004, the Evening Telegraph launched an appeal to help her family raise money for a wheelchair and since then readers have helped raise thousands of pounds for the Nikita Ray Disability Fund.

 

Now, her parents Malcolm and Trudie want to give something back to the people who have helped them.

 

Instead of just appealing for funding they will be putting on a production of The Three Musketeers.

 

The Ray family is hoping to raise 4,000 for Nikita’s ongoing treatment by staging the pantomime.

 

Tickets will be on sale on Sunday at the Christmas lights switch-on in Rushden High Street or from George Alan.

 

Three performances of the family show will be held at Park Road Baptist Church Hall in Rushden on Friday, January 29, and Saturday, January 30.

 

The performance will start at 7.30pm on Friday and at 2pm and 7.30pm on Saturday.

 

Tickets cost 6 for adults, 3 for children and 15 for a family of four.

 

To book tickets call Mr Ray on 07733 625176.

Panto show to thank community

Posted on May 27, 2013 at 4:55 AM Comments comments (0)

09 July 2009

The family of a young girl who has a brain disorder are hoping to give something back to the community which has helped her over the past three years by staging a pantomime.

Seven-year-old Nikita Ray, of Rushden, was born with cerebral palsy and microcephaly, which means her brain develops at a much slower rate than normal.

In 2004, the Evening Telegraph launched an appeal to help her family raise money for a wheelchair and since then readers have helped raise thousands of pounds for the Nikita Ray Disability Fund.

Now, her parents Malcolm and Trudie want to give something back to the people who have helped them. Instead of just appealing for funding they will be putting on a production of The Three Musketeers.

Mr Ray said: "For many years, we have been asking for money for Nikita's fund and not giving anything in return so we thought we would put on a panto and give something back.

"We want to make it really fun and get the crowds involved so we thought The Three Musketeers was the perfect production.

"The funding we receive is invaluable to us. We wouldn't survive without it. We just want to let people know how grateful we are by doing something for them they can enjoy."

They are looking for four men and two women to take on the main roles and act as stand-ins.

 

Volunteers, who should be over 17, are asked to get in touch with Nikita's family as soon as possible so auditions can be completed this month and rehearsals can begin in August.

 

The Ray family is hoping to raise 4,000 for Nikita's ongoing treatment by staging the pantomime.

 

Three performances of the family show will be held at Park Road Baptist Church Hall in Rushden on November 20 and 21.

 

To volunteer for the show, call Mr Ray on 07733 625176.

Show will help fund treatment for Rushden girl Nikita

Posted on June 1, 2009 at 4:50 AM Comments comments (0)

01 June 2009

Talented performers are needed for the first ever fundraising show to be held for a young girl who has a brain disorder.

 

Seven-year-old Nikita Ray, of Rushden, was born with cerebral palsy and microcephaly, which means her brain develops at a much slower rate than normal.

 

She first touched the hearts of Evening Telegraph readers when we launched an appeal for her in January 2004 to raise money for a wheelchair.

 

Over the years readers have helped raise thousands of pounds for the Nikita Jade Disability Fund.

 

Her parents, Malcolm and Trudie, now hope to raise 4,000 for her ongoing treatment by putting on a production of the Three Musketeers by James Barry this winter.

 

Mr Ray said: "Trudie and I hate asking people for money so we thought that we would do something so people would get something in return for their money.

 

"We thought it would be great to put on a show and when Trudie read me the Three Musketeers I thought it was brilliant.

 

"We're hoping people will go out happier having seen the show and we will come away with more funds for Nikita."

 

Every year Nikita visits Bobath Hospital in London for a two-week course of intensive physiotherapy, occupational therapy and speech therapy.

 

The course alone costs 2,000 and the family also has to raise money for their travelling costs to London every day and for any equipment Nikita needs after the course to help her progress further.

 

Mr Ray said: "The course is so important because every time she comes away from it she has achieved amazing things."

 

To help their dream show become a reality, they are looking for four men and two women to take on the main roles and act as stand-ins.

 

Volunteers, who should be over 17, are asked to get in touch with Nikita's family as soon as possible so the audition process can be completed in July and the rehearsals can begin in August.

 

The family is also looking for volunteer stage hands, and in particular people who have experience of using scenery, to come forward as well.

 

Three performances of the family show will be held at Park Road Baptist Church hall in Rushden on November 20 and 21.

 

To volunteer for the show contact Mr Ray on 07733 625176.

Nikita's family close to target

Posted on September 30, 2008 at 4:50 AM Comments comments (0)

30 September 2008

The family of a girl with a brain disorder are within touching distance of raising enough money for crucial medical treatment.

 

Malcolm and Trudie Ray, of Grafton Street, Rushden, need just 600 more to send daughter Nikita on an intense two-week course which would help in her battle against an illness she has had from birth.

 

The six-year-old suffers from cerebral palsy and microcephaly, which means her brain develops at a slower rate than normal and affects her posture, mobility and communication skills.

 

However, the physiotherapy course at Bobarth Hospital in London, which could help improve her health and development, costs 3,500 in total.

 

To read a previous story about Nikita click here.

 

Mrs Ray said: "We really are on the homeward stretch now. We have been overwhelmed that people who don't even know us have donated money.

 

"At the church we go to, lots of money has been donated just by people wanting to help."

 

The cash for the latest fundraising drive has been raised with a number of collections, including the Rays collecting more than 240 at Asda in Rushden and Evening Telegraph readers making generous donations at our offices.

 

A collection at the church in Park Road, Rushden, also raised 1,100.

 

Nikita's parents want to raise the money because of the benefits the physiotherapy course has had on Nikita in the past.

 

When she has gone there previously, Mr Ray said she "changes completely," including starting to sit up and communicating by pointing.

 

Mr Ray said: "When she comes back she starts doing things we thought she'd never do. It's unbelievable how much she comes along."

 

The course consists of a 45-minute lesson each day when specialist staff work with Nikita to improve her mobility.

 

It starts with an assessment so doctors can determine how best to spend her time on the course and what they should focus on. They then teach her to do new things including moving about and using objects.

 

Nikita, who attends Rowan Gate Primary School in Wellingborough, is well-known in the community, especially after the Evening Telegraph helped raise cash for a wheelchair in 2004.

 

The family is hoping to raise the final few hundred pounds by holding a table-top sale at the Scout Hut in Rushden on October 25.

 

Anyone who is interested in holding a stall or making a donation to the fund can call Andrew Papworth on 01933 443562.

Family's plea for funds to treat Nikita

Posted on August 19, 2008 at 4:45 AM Comments comments (0)

19 August 2008

The family of a girl with a brain disorder are seeking money for treatment to improve her quality of life after funding cuts.

 

Nikita Ray needs 3,500 to attend an intense two-week course in hospital which would help her make progress against an illness she has had from birth.

 

The six-year-old, from Grafton Road, Rushden, was born with cerebral palsy and microcephaly, which means her brain develops at a slower rate than normal, but she has battled her condition to improve her posture and mobility.

 

In the past healthcare authorities have funded her physiotherapy courses at Bobarth Hospital in London, but her parents say the cash has now run dry.

 

Dad Malcolm Ray said: "We are willing to drive hundreds of miles because the course is that good.

 

"It's got her sitting up a bit and it's taught her how to handle toys, how to roll and move about.

 

"Whenever she goes there she changes completely.

 

"When she comes back she starts doing things we thought she'd never do.

 

"I can't believe how much she comes along.

 

"Taking the time to get this money is a full-time thing.

 

"It has been recommended that she goes and we really want her to go."

 

The course is comprised of a 45-minute lesson each day, which sees specialist staff working with Nikita to improve her mobility.

 

On the first few days Nikita is assessed so doctors can decide how best to spend her time on the course.

 

She is then taught to do new things such as using objects and moving on the floor before being given a set regime of activity to help her to develop further.

 

Parents Malcolm and Trudie are also taught how to manipulate her arms and use physiotherapy techniques to continue her development at home.

 

In the past it has helped her sit up on her own for four to five minutes and take part in activities such as coast walking and horseriding with her parents.

 

Nikita, who attends Rowan Gate Primary School in Wellingborough, is much loved in the community and by Evening Telegraph readers.

 

In January 2004 The Evening Telegraph launched an appeal to raise money for a specialist wheelchair, worth more than 2,500.

 

It was designed to give Nikita greater independence and was bought with money from the Nikita Jade Disability Fund, with money coming in from readers and a wheelchair service.

 

The family has received a 61,000 council grant for an extension to the side of their house for a bedroom, bathroom and specialised hoisting equipment to help Nikita.

 

Anyone who would like to donate to Nikita's fund can contact the Evening Telegraph on 01933 443562.

Sir Trevor Brooking opens new state-of-the-art sports pitch for Manor School

Posted on June 16, 2008 at 7:50 PM Comments comments (0)

From the Football Foundation

Aspiring football stars of Manor School and Sports College will soon be able to hone their skills with the opening of an all-weather floodlit pitch, funded by the Football Foundation and East Northants District Council. It will be officially opened by West Ham and England soccer legend Sir Trevor Brooking, 10.30am Friday 20th June 2008 at Manor School and Sports College, Mountbatten Way, Raunds, Northants NN9 6PA.

 

The ceremony will feature a football competition for Manor School students and a skills challenge for budding primary school footballers.

 

Manor School and Sports College were awarded a grant of £335,574 towards the new pitch from the Football Foundation, the charity which is funded by the Premier League, The FA and Government.

 

Open all year round, the pitch will be available to all schools, clubs and community in East Northamptonshire and beyond. It is anticipated that it will enable 39% more boys and girls at the school to get regular access to sport at the site. Whilst 103% more male users and 37% more female users from the local community will get opportunities to play regular sport as a result of the new playing surface.

 

Mrs Linda Brooks, Head Teacher of Manor School and Sports College, said: “I am delighted that we now have such a fantastic sports facility. This state-of-the-art pitch will be a great asset to both students at Manor School and the local community.”

 

Paul Thorogood, Chief Executive of the Football Foundation, said: “This new all-weather pitch will really benefit local people of all ages. Congratulations should go to Manor School and Sports College and the Northamptonshire FA.

 

“It is thanks to the contributions of our funding partners – the Premier League, The Football Association and Government – that the Football Foundation exists to invest in projects such as this. I encourage other organisations in Northamptonshire and across the country to apply to us for grants.”

 

The occasion is also being used to raise funds for The Nikita Jade Disability Fund – the charity chosen by Redgrave House students for 2008. The proceeds will help fund vital therapy for Nikita at the Bobath Centre for Children with Cerebral Palsy.

 

Nikita gets a special gift

Posted on October 11, 2006 at 4:45 AM Comments comments (0)

11 October 2006

A GIRL with a brain disorder has finally received a specialist wheelchair, bought with funds raised by generous Evening Telegraph readers.

 

Nikita Ray, of Grafton Road, Rushden, touched the hearts of many when the Evening Telegraph launched an appeal in January, 2004, to raise money for the wheelchair.

 

The four-year-old was born with cerebral palsy and microcephaly, which means her brain develops at a much slower rate than normal.

 

Despite readers quickly reaching the target for a wheelchair, Nikita was unable to use a chair at the time.

 

But her parents, Trudie and Malcolm Ray, have just taken delivery of the chair, worth more than 2,500, to help Nikita, improve her posture and mobility.

 

Mrs Ray said: "We couldn't have done this without all the fundraising. It has been a long time coming but we are very pleased with the chair. It will give her good posture and mobility and hopefully more independence.

 

"She is going to spend a lot of time in a wheelchair so we had to make sure she had the right one. This one was made-to-measure by specialists."

 

The chair was bought with money from the Nikita Jade Disability Fund, supported by Evening Telegraph readers, with other money coming from a wheelchair service.

 

As well as getting her chair, Nikita has developed beyond many people's expectations. She can now sit up on her own for four to five minutes, which enables her to play far more than before. She is much more mobile and can roll around on the floor to get to where she wants to be.

 

Nikita attends Rowan Gate Primary School in Wellingborough and recently took part in activities including coast walking and horseriding with her parents.

 

Mr Ray said: "The doctors said they never expected her to be able to do this.

 

"Communication is still a big issue and if we could crack that, we really will have achieved something."

Nikita hit by transport blunder

Posted on October 6, 2005 at 4:45 AM Comments comments (0)

06 October 2005

THE parents of a youngster with cerebral palsy have been taking their daughter to school because the county council cannot provide transport.

 

Three-year-old Nikita Ray of Grafton Road, Rushden, was promised transport to and from Rowan Gate School in Wellingborough if her parents Trudie and Malcolm found a wheelchair suitable for vehicles provided by Northamptonshire County Council.

 

Despite getting the wheelchair, the youngster, who was born with cerebral palsy and microcephaly which means her head is too small and her brain develops at a slower rate than normal, has not yet been taken to school by the council since starting on September 21.

 

Nikita is being taken home in a bus equipped to take wheelchair-users but none of the taxis sent by the county council to pick her up in the morning can transport her safely and legally.

 

Mrs Ray, 41, said: "They bring her home from school on the bus but they haven't been able to arrange transport in the morning.

 

"We have been raising money to buy other equipment for Nikita so the county council don't have to, and then they can't sort this for her."

 

Suggestions by Mr and Mrs Ray for Nikita to be taken to school on buses with seats for wheelchair-users have also been disregarded because the county council is not keen on changing the current bus routes.

 

Mr Ray, 52, said: "We have had excuse after excuse. But we need to get something in place that is permanent – Nikita needs to have a routine.

 

"It would be a travesty if the council was not going to continue providing transport for Nikita and other children with disabilities."

 

Cllr Bob Seery, member for transport and highways, said: "Since we were made aware of Nikita's requirement for transport we have been working to ensure that a suitable vehicle is made available for her journey as

 

soon as possible.

 

"We are now finalising those arrangements which should shortly be in place.

 

"It is acknowledged that this has inconvenienced the family and details of how they may claim for any mileage expenses they have incurred for the journey during this time will be provided."

What an achievement

Posted on September 15, 2005 at 4:40 AM Comments comments (0)

15 September 2005

A YOUNG girl with cerebral palsy is the inspiration for her parents in completing their own personal challenge.

 

Nikita Ray, three, of Grafton Road, Rushden, was born with cerebral palsy and microcephaply, which means her head is too small and her brain develops at a slower rate than normal.

 

Her parents, Trudie and Malcolm Ray, are looking to raise money to help with Nikita's development by climbing Mount Snowdon on September 25 with Trudie's sister and brother-in-law, Rita and Barry Page.

 

But the couple have been given an extra incentive to make sure they complete the trek with Nikita learning to roll over in the past two weeks – something she has never been able to do before due to her disability.

 

Mrs Ray said: "The climb is a massive challenge for us, not just because we are not really fit but also trying to fit in training with looking after Nikita.

 

"But Nikita is doing really well and has just learned to roll over, which is a massive achievement for her.

 

"Up until that point, she has been totally dependent on us for moving her anywhere.

 

"Now we can't stop her."

 

This progress comes after Nikita had two weeks of intensive treatment at the Bobath Centre for children with cerebral palsy in London earlier this year.

 

The 2,500 course was paid for by the local health authority, but it is unlikely it will be able to fund it again for Nikita.

 

Mrs Ray said: "We want to raise as much money as possible for Nikita to have more treatment next year."

 

About 500 has been raised so far.

 

Anyone wishing to make a donation or sponsor the climbers can e-mail [email protected] or call 01933 397070.

Parents' tough challenge for Nikita

Posted on June 16, 2005 at 4:40 AM Comments comments (0)

16 July 2005

THE parents of a three-year-old girl with cerebral palsy are to scale a mountain to raise £2,500 for her development.

 

Nikita Ray, of Grafton Road, Rushden, was born with cerebral palsy and microcephaly, which means her head is too small and her brain develops at a slower rate than normal.

 

Nikita cannot sit up unaided, but after two weeks of intensive treatment at the Bobath Centre for children with cerebral palsy in London, she has made significant progress in her posture and movement.

 

The 2,500 course was paid for by the local health authority but it is unlikely they will fund it again next year.

 

So mother Trudie, 41, and her sister Rita Page, 51, will be climbing Mount Snowdon in September to raise money towards another course.

 

They will be joined by Nikita's father Malcolm and Mrs Page's husband Barry as team leader in attempting to climb the highest mountain in England and Wales, which is 3,560ft high.

 

Mrs Ray said: "We have got to do whatever we can to help Nikita.

 

"We are not very fit so it is a massive challenge for us. But if we raise the money, it will all be worth it."

 

Mr Ray said: "Nikita has come on 100 per cent since going to Bobath. It would be smashing to raise the money for her to go again."

 

Nikita touched the hearts of ET readers last year when they raised several thousand pounds for a specialist wheelchair.

 

She has been unable to use one yet, but the money in the Nikita Jade Disability Fund has helped buy specialist equipment including a fully equipped sensory room, physiotherapy bench and various communication aids.

 

Anyone wishing to sponsor the climbers can e-mail their details and the amount to [email protected] Sponsorship forms are also available to sign in George Alan Menswear Ltd and the ET office, both in High Street, Rushden.

Readers bring joy to Nikita

Posted on June 27, 2004 at 4:40 AM Comments comments (0)

27 July 2004

THE generosity of ET readers has helped a little girl suffering from a brain disorder take the first steps towards independence.

 

Two-year-old Nikita Ray of Grafton Road, Rushden, touched the hearts of many when the ET launched a campaign in January with her parents to raise 5,000 for the youngster born with cerebral palsy and microcephaly.

 

This means her brain develops at a much slower rate than usual. She is also unable to sit up or put any pressure on her legs.

 

Following support from ET readers, parents Trudie and Malcolm have been able to buy two communication aids.

 

Nikita now has a Big Mack switch to attach to battery-operated toys. The enlarged button lets her turn toys on and not struggle with smaller buttons.

 

She can attach the switch to Tigger, who will talk when Nikita hits the button instead of having to squeeze a paw for a reaction.

 

Mrs Ray said: "The switch means she can play independently, which she could not do before.

 

"This should help her communication.

 

"We don't know what sort of communication skills she's going to have.

 

Another new aid is a picture board for Nikita to match words with pictures, including pictures of her family and their voices. The voices sound when she touches the pictures.

 

Mr Ray said: "It is so she can associate pictures with people and pictures with noises. We know she recognises us and familiar sounds."

 

Nikita's parents are now looking at more equipment to help Nikita develop her motor skills and enable her to use a specialist wheelchair in the future.

 

Next month Nikita is starting at Busy Bees nursery in Park Road, Rushden, for two afternoons a week where she will be able to interact with other children.

You've done it!

Posted on April 10, 2004 at 4:35 AM Comments comments (0)

10 April 2004

GENEROUS ET readers have smashed an appeal target and donated thousands of pounds which will transform a little girl's life.

 

Two-year-old Nikita Ray, of Grafton Road, Rushden, can now look forward to a brighter future after the appeal to raise 5,000 for specialist equipment passed the target by 470.

 

In January the ET joined forces with Nikita's parents Trudie and Malcolm to raise the cash for the youngster who has microcephaly. This means her brain develops at a slower rate than usual, leaving her unable to sit up unaided or put pressure on her legs.

 

Nikita's plight touched the hearts of hundreds of readers. One anonymous donor handed over 305.

 

Last month the total stood at 4,880 and the target was reached when a friend of the family raised 590 at a skittles event.

 

Mrs Ray said: "I want to say thank-you to everybody.

 

"When we first talked about the appeal we thought it would take years to reach the target. We couldn't have done it without the ET and its readers."

 

The cash will be used to buy an adapted car seat, which costs about 500 and swivels to make it easier for Mr and Mrs Ray to get Nikita in and out of the car.

 

The family also wants to buy communication aids which will help the youngster.

 

Mrs Ray said: "At the moment Nikita uses her whole hand or fist to do things but this equipment should help her use her fingers more."

 

Nikita's family will continue to raise funds and anyone wanting to support them can do so by taking cash or cheques to the Nikita Jade Disability Fund at HSBC bank, 37 High Street, Rushden.


Rss_feed